Public PREFER deliverables

Patient preference studies can give valuable information to support decision making for regulators and HTA bodies. We have spent the last 5 years establishing recommendations to support development of guidelines for industry, Regulatory Authorities and HTA bodies on how and when to include patient perspectives on benefits and risks of medicinal products. 

Patient preference methodology

Isabelle Huys, Jorien Veldwijk, Sarah Harding, & Jürgen Kübler. (2021). Desires, expectations, concerns and requirements of stakeholders about methodologies for patient-preference elicitation and their use in making well- informed decisions regarding medicinal products. Zenodo. doi: 10.5281/zenodo.5499904

Isabelle Huys, Esther de Bekker-Grob, Bennett Levitan, Jürgen Kübler, Eline van Overbeeke, & Chiara Whichello. (2021, November 25). Processes, conditions and contextual factors that influence the utility and role of patient preference studies. Zenodo. doi: 10.5281/zenodo.5727430

Jorien Veldwijk, Richard Hermann, Karin Schölin Bywall, Chiara Whichello, Stephen Watt, & Jonathan Mauer. (2021, December 2). Identification of assessment criteria used at decision points throughout the medical product lifecycle. Zenodo. doi: 10.5281/zenodo.5750113

Ulrik Kihlbom, Cathy Anne Pinto, Elisabeth Furberg, Åsa Grauman, Jorien Veldwijk, Selena Russo, … Geert Vanderstichele. (2021, December 2). Identification of educational and psychological feature methods. Zenodo. doi: 10.5281/zenodo.5750154

Esther W. de Bekker-Grob, Chiara Whichello, Vaishali Patadia, Rachael DiSantostefano, Bennett Levitan, & Juhaeri Juhaeri. (2021, December 7). Characterising and appraising the methods. Zenodo. doi: 10.5281/zenodo.5763873

Esther de Bekker-Grob, Vikas Soekhai, Bennett Levitan, Jorien Veldwijk, & Juhaeri Juhaeri. (2021). Report on methods for measuring patient benefit-risk preferences in medical treatment. doi: 10.5281/zenodo.5727440

Esther W. de Bekker-Grob, Chiara Whichello, Vaishali Patadia, Rachael DiSantostefano, Bennett Levitan, & Juhaeri Juhaeri. (2021, December 7). Identification of candidate methodologies and criteria to assess empirical case and simulation studies. Zenodo. doi: 10.5281/zenodo.5763889

Rachael DiSantostefano, Conny Berlin, Ian Smith, Bennett Levitan, Juhaeri Juhaeri, Esther de Bekker-Grob, … Jorien Veldwijk. (2021, December 7). Determine research questions and assessment criteria for the preference studies used in the empirical case studies. Zenodo. doi: 10.5281/zenodo.5763902

Last modified: 2022-01-14