Publications in scientific journals

  • Simons, Gwenda; Caplan, Joshua; DiSantostefano, Rachael L.; Veldwijk, Jorien et al.

    Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations

    Part of Arthritis Research & Therapy, 2022.

    DOI Uploaded full-text To DiVA

    Open access

  • Soekhai, Vikas; Donkers, Bas; Levitan, Bennett; de Bekker-Grob, Esther W.

    Case 2 best-worst scaling: For good or for bad but not for both

    Part of Journal of Choice Modelling, p. 100325-100325, 2021.

    DOI To DiVA

    Open access

  • Oliveri, Serena; Lanzoni, Lucilla; Petrocchi, Serena; Janssens, Rosanne et al.

    Opportunities and Challenges of Web-Based and Remotely Administered Surveys for Patient Preference Studies in a Vulnerable Population

    Part of Patient Preference and Adherence, p. 2509-2517, 2021.

    DOI To DiVA

    Open access

  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Baecklund, Eva et al.

    Does being exposed to an educational tool influence patient preferences?: The influence of an educational tool on patient preferences assessed by a discrete choice experiment

    Part of Patient Education and Counseling, p. 2577-2585, 2021.

    DOI To DiVA

  • Monzani, Dario; Petrocchi, Serena; Oliveri, Serena; Veldwijk, Jorien et al.

    Patient Preferences for Lung Cancer Treatments: A Study Protocol for a Preference Survey Using Discrete Choice Experiment and Swing Weighting

    Part of Frontiers in Medicine, 2021.

    DOI To DiVA

    Open access

  • Janssens, Rosanne; Arnou, Reinhard; Schoefs, Elise; Petrocchi, Serena et al.

    Key Determinants of Health-Related Quality of Life Among Advanced Lung Cancer Patients: A Qualitative Study in Belgium and Italy

    Part of Frontiers in Pharmacology, 2021.

    DOI To DiVA

    Open access

  • van Overbeeke, Eline; Hauber, Brett; Michelsen, Sissel; Peerlinck, Kathelijne et al.

    Patient preferences for gene therapy in haemophilia: Results from the PAVING threshold technique survey

    Part of Haemophilia, 2021.

    DOI To DiVA

    Open access

  • Russo, Selena; Monzani, Dario; Pinto, Cathy Anne; Vergani, Laura et al.

    Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies

    Part of Patient Preference and Adherence, p. 1331-1345, 2021.

    DOI Uploaded full-text To DiVA

    Open access

  • Janssens, Rosanne; Lang, Tamika; Vallejo, Anna; Galinsky, Jayne et al.

    Patient Preferences for Multiple Myeloma Treatments: A Multinational Qualitative Study

    Part of Frontiers in Medicine, 2021.

    DOI To DiVA

    Open access

  • Falahee, Marie; Simons, Gwenda; DiSantostefano, Rachael; Valor Méndez, Larissa et al.

    Treatment preferences for preventive interventions for rheumatoid arthritis: protocol of a mixed methods case study for the Innovative Medicines Initiative PREFER project

    Part of BMJ Open, 2021.

    DOI Uploaded full-text To DiVA

    Open access

  • Smith, Ian P.; DiSantostefano, Rachael L.; de Bekker-Grob, Esther W.; Levitan, Bennet et al.

    Methodological Priorities for Patient Preferences Research: Stakeholder Input to the PREFER Public–Private Project

    Part of Patient, 2021.

    DOI To DiVA

    Open access

  • van Overbeeke, Eline; Hauber, Brett; Michelsen, Sissel; Goldman, Michel et al.

    Patient Preferences to Assess Value IN Gene Therapies: Protocol Development for the PAVING Study in Hemophilia

    Part of Frontiers in Medicine, 2021.

    DOI To DiVA

    Open access

  • Jimenez-Moreno, A. Cecilia; van Overbeeke, Eline; Pinto, Cathy Anne; Smith, Ian et al.

    Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study

    Part of Patient, 2021.

    DOI To DiVA

    Open access

  • Petrocchi, Serena; Janssens, Rosanne; Oliveri, Serena; Arnou, Reinhard et al.

    What Matters Most to Lung Cancer Patients? A Qualitative Study in Italy and Belgium to Investigate Patient Preferences

    Part of Frontiers in Pharmacology, 2021.

    DOI To DiVA

    Open access

  • Durosini, Ilaria; Janssens, Rosanne; Arnou, Reinhard; Veldwijk, Jorien et al.

    Patient Preferences for Lung Cancer Treatment: A Qualitative Study Protocol Among Advanced Lung Cancer Patients

    Part of Frontiers In Public Health, 2021.

    DOI To DiVA

    Open access

  • Whichello, Chiara; Levitan, Bennet; Juhaeri, Juhaeri; Patadia, Vaishali et al.

    Appraising patient preference methods for decision-making in the medical product lifecycle: an empirical comparison

    Part of BMC Medical Informatics and Decision Making, 2020.

    DOI To DiVA

    Open access

  • Jimenez-Moreno, Aura Cecilia; Pinto, Cathy Anne; Levitan, Bennett; Whichello, Chiara et al.

    A study protocol for quantifying patient preferences in neuromuscular disorders: a case study of the IMI PREFER Project [version 1; peer review: 1 approved]

    Part of Wellcome Open Research, 2020.

    DOI Uploaded full-text To DiVA

    Open access

  • Whichello, Chiara; Schölin Bywall, Karin; Mauer, Jonathan; Watt, Stephen et al.

    An overview of critical decision-points in the medical product lifecycle: Where to include patient preference information in the decision-making process?

    Part of Health Policy, p. 1325-1332, 2020.

    DOI Uploaded full-text To DiVA

    Open access

  • Schölin Bywall, Karin; Kihlbom, Ulrik; Hansson, Mats; Falahee, Marie et al.

    Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients

    Part of Arthritis Research & Therapy, 2020.

    DOI Uploaded full-text To DiVA

    Open access

  • van Overbeeke, Eline; Michelsen, Sissel; Hauber, Brett; Peerlinck, Kathelijne et al.

    Patient perspectives regarding gene therapy in haemophilia: Interviews from the PAVING study

    Part of Haemophilia, p. 1-8, 2020.

    DOI To DiVA

    Open access

  • van Overbeeke, Eline; Forrester, Valérie; Simoens, Steven; Huys, Isabelle

    Use of Patient Preferences in Health Technology Assessment: Perspectives of Canadian, Belgian and German HTA Representatives

    Part of Patient, 2020.

    DOI To DiVA

    Open access

  • van Overbeeke, Eline; Vanbinst, Inès; Jimenez-Moreno, Aura Cecilia; Huys, Isabelle

    Patient Centricity in Patient Preference Studies: The Patient Perspective

    Part of Frontiers in Medicine, p. 1-10, 2020.

    DOI To DiVA

    Open access

  • Janssens, Rosanne; Huys, Isabelle; van Overbeeke, Eline; Whichello, Chiara et al.

    Opportunities and challenges for the inclusion of patient preferences in the medical product life cycle: a systematic review

    Part of BMC Medical Informatics and Decision Making, 2019.

    DOI To DiVA

    Open access

  • Russo, Selena; Jongerius, Chiara; Faccio, Flavia; Pizzoli, Silvia F.M. et al.

    Understanding Patients' Preferences: A Systematic Review of Psychological Instruments Used in Patients' Preference and Decision Studies

    Part of Value in Health, p. 491-501, 2019.

    DOI Uploaded full-text To DiVA

    Open access

  • van Overbeeke, Eline; Janssens, Rosanne; Whichello, Chiara; Schölin Bywall, Karin et al.

    Design, Conduct, and Use of Patient Preference Studies in the Medical Product Life Cycle: A Multi-Method Study

    Part of Frontiers in Pharmacology, 2019.

    DOI Uploaded full-text To DiVA

    Open access

  • Whichello, Chiara; van Overbeeke, Eline; Janssens, Rosanne; Schölin Bywall, Karin et al.

    Factors and Situations Affecting the Value of Patient Preference Studies: Semi-Structured Interviews in Europe and the US

    Part of Frontiers in Pharmacology, 2019.

    DOI Uploaded full-text To DiVA

    Open access

  • Janssens, Rosanne; Russo, Selena; van Overbeeke, Eline; Whichello, Chiara et al.

    Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA

    Part of Patient, p. 513-526, 2019.

    DOI Uploaded full-text To DiVA

    Open access

  • Soekhai, Vikas; Whichello, Chiara; Levitan, Bennet; Veldwijk, Jorien et al.

    Methods for exploring and eliciting patient preferences in the medical product lifecycle: a literature review

    Part of Drug Discovery Today, 2019.

    DOI To DiVA

    Open access

  • van Overbeeke, Eline; Whichello, Chiara; Janssens, Rosanne; Veldwijk, Jorien et al.

    Factors and situations influencing the value of patient preference studies along the medical product lifecycle: a literature review

    Part of Drug Discovery Today, 2018.

    DOI To DiVA

    Open access

  • de Bekker-Grob, Esther; Berlin, Conny; Levitan, Bennet; Raza, Karim et al.

    Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project

    Part of Patient, p. 263-266, 2017.

    DOI Uploaded full-text To DiVA

    Open access

Abstracts from PREFER

  • de Bekker-Grob, Esther W.; Juhaeri, Juhaeri; Kihlbom, Ulrik; Levitan, Bennett

    Giving patients' preferences a voice in the medical product lifecycle: why, when and how?: The public-private PREFER project: Work package 2

    Part of ISPOR Value & Outcomes Spotlight, p. 19-21, 2018.

    Uploaded full-text To DiVA

    Open access

  • Janssens, R.; Huys, I; van Overbeeke, E.; Whichello, C. et al.

    Stakeholder Perspectives On The Integration Of Patient Preferences In The Medical Product Life Cycle: A Multimethod Approach

    Part of Value in Health, p. A689-A689, 2017.

    DOI To DiVA

  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik

    Rheumatoid Arthritis Patients’ Perspectives On The Value Of Patient Preferences In Regulatory Decision-Making During Drug Development: A Qualitative Study

    Part of Value in Health, p. A540-A540, 2017.

    DOI To DiVA

  • Soekhai, V; Whichello, C.; Levitan, B.; Veldwijk, Jorien et al.

    Compendium Of Methods For Measuring Patient Preferences In Medical Treatment

    Part of Value in Health, p. A684-A685, 2017.

    DOI To DiVA

  • van Overbeeke, E.; Whichello, C.; Janssens, R.; de Bekker-Grob, E. et al.

    Conditions And Contextual Factors That Influence The Utility And Application Of Patient Preference Studies: A Study Combining Literature And Focus Groups

    Part of Value in Health, p. A690-A691, 2017.

    DOI To DiVA

PREFER Recommendations

PREFER Recommendations

Why, when and how to assess and use patient preferences in medical product decision-making

The PREFER project has developed recommendations for how and when it is best to perform and include patient preferences in decision making during the medical product life cycle. Supporting the development of guidelines for structured patient input into decision-making for the pharmaceutical industry, regulatory authorities, health technology assessment bodies and reimbursement agencies!

Download recommendations

The PREFER Recommendations in brief

PREFER recommendations in brief

Want to know why, when and how PREFER recommends that pharma, regulators, HTA bodies and payers assess and use patient preferences in medical product decision-making? In this brief, we explain when and why results from patient preference studies can inform decision-making. We also describe how the PREFER framework should be used, how to involve key stakeholders, how to pick a method for your research questions, explore how participants’ psychological characteristics may offer important insights into preference heterogeneity, and how educational materials can support patients’ understanding. Or in brief, a plain language summary of the reason why we think structured patient input can improve medical product decision-making. 

Download the brief

Want a summary of what we have published?

Abstract book publications

PREFER looks at how and when it is best to perform and include patient preferences in decision making during the medical product life cycle. We include patient stakeholders at every level of the project. The end-result will be recommendations to support development of guidelines for industry, Regulatory Authorities and HTA bodies. 

Want to know what we have published so far? In this pdf booklet, you will find a list of our publications with abstracts and links to full text.

The booklet was updated on September 23, 2021..

Download publications booklet

Last modified: 2022-04-29
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