Publications in scientific journals
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Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations
Part of Arthritis Research & Therapy, 2022.
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Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies
Part of Patient Preference and Adherence, p. 1331-1345, 2021.
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Treatment preferences for preventive interventions for rheumatoid arthritis: protocol of a mixed methods case study for the Innovative Medicines Initiative PREFER project
Part of BMJ Open, 2021.
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A study protocol for quantifying patient preferences in neuromuscular disorders: a case study of the IMI PREFER Project [version 1; peer review: 1 approved]
Part of Wellcome Open Research, 2020.
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An overview of critical decision-points in the medical product lifecycle: Where to include patient preference information in the decision-making process?
Part of Health Policy, p. 1325-1332, 2020.
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Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients
Part of Arthritis Research & Therapy, 2020.
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Understanding Patients' Preferences: A Systematic Review of Psychological Instruments Used in Patients' Preference and Decision Studies
Part of Value in Health, p. 491-501, 2019.
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Design, Conduct, and Use of Patient Preference Studies in the Medical Product Life Cycle: A Multi-Method Study
Part of Frontiers in Pharmacology, 2019.
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Factors and Situations Affecting the Value of Patient Preference Studies: Semi-Structured Interviews in Europe and the US
Part of Frontiers in Pharmacology, 2019.
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Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA
Part of Patient, p. 513-526, 2019.
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Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project
Part of Patient, p. 263-266, 2017.
Abstracts from PREFER
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Giving patients' preferences a voice in the medical product lifecycle: why, when and how?: The public-private PREFER project: Work package 2
Part of ISPOR Value & Outcomes Spotlight, p. 19-21, 2018.
PREFER Recommendations

Why, when and how to assess and use patient preferences in medical product decision-making
The PREFER project has developed recommendations for how and when it is best to perform and include patient preferences in decision making during the medical product life cycle. Supporting the development of guidelines for structured patient input into decision-making for the pharmaceutical industry, regulatory authorities, health technology assessment bodies and reimbursement agencies!
The PREFER Recommendations in brief

Want to know why, when and how PREFER recommends that pharma, regulators, HTA bodies and payers assess and use patient preferences in medical product decision-making? In this brief, we explain when and why results from patient preference studies can inform decision-making. We also describe how the PREFER framework should be used, how to involve key stakeholders, how to pick a method for your research questions, explore how participants’ psychological characteristics may offer important insights into preference heterogeneity, and how educational materials can support patients’ understanding. Or in brief, a plain language summary of the reason why we think structured patient input can improve medical product decision-making.
Want a summary of what we have published?

PREFER looks at how and when it is best to perform and include patient preferences in decision making during the medical product life cycle. We include patient stakeholders at every level of the project. The end-result will be recommendations to support development of guidelines for industry, Regulatory Authorities and HTA bodies.
Want to know what we have published so far? In this pdf booklet, you will find a list of our publications with abstracts and links to full text.
The booklet was updated on September 23, 2021..