Publications from PREFER
Patient Centricity in Patient Preference Studies: The Patient Perspective
Part of Frontiers in Medicine, p. 1-10, 2020.
Opportunities and challenges for the inclusion of patient preferences in the medical product life cycle: a systematic review
Part of BMC Medical Informatics and Decision Making, 2019.
Design, Conduct, and Use of Patient Preference Studies in the Medical Product Life Cycle: A Multi-Method Study
Part of Frontiers in Pharmacology, 2019.
Factors and Situations Affecting the Value of Patient Preference Studies: Semi-Structured Interviews in Europe and the US
Part of Frontiers in Pharmacology, 2019.
Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA
Part of Patient, p. 513-526, 2019.
Methods for exploring and eliciting patient preferences in the medical product lifecycle: a literature review
Part of Drug Discovery Today, 2019.
Understanding Patients' Preferences: A Systematic Review of Psychological Instruments Used in Patients' Preference and Decision Studies
Part of Value in Health, p. 491-501, 2019.
Giving patients' preferences a voice in the medical product lifecycle: why, when and how?: The public-private PREFER project: Work package 2
Part of ISPOR Value & Outcomes Spotlight, p. 19 19-21 21, 2018.
Factors and situations influencing the value of patient preference studies along the medical product lifecycle: a literature review
Part of Drug Discovery Today, 2018.
Stakeholder Perspectives On The Integration Of Patient Preferences In The Medical Product Life Cycle: A Multimethod Approach
Part of Value in Health, p. A689-A689, 2017.
Rheumatoid Arthritis Patients’ Perspectives On The Value Of Patient Preferences In Regulatory Decision-Making During Drug Development: A Qualitative Study
Part of Value in Health, p. A540-A540, 2017.
Compendium Of Methods For Measuring Patient Preferences In Medical Treatment
Part of Value in Health, p. A684-A685, 2017.
Conditions And Contextual Factors That Influence The Utility And Application Of Patient Preference Studies: A Study Combining Literature And Focus Groups
Part of Value in Health, p. A690-A691, 2017.
Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project
Part of Patient, p. 263-266, 2017.
Want a summary of what we have published?
PREFER looks at how and when it is best to perform and include patient preferences in decision making during the medical product life cycle. We include patient stakeholders at every level of the project. The end-result will be recommendations to support development of guidelines for industry, Regulatory Authorities and HTA bodies.
Want to know what we have published so far? In this pdf booklet, you will find a list of our publications with abstracts and links to full text.
The booklet was updated on October 16 2019.
Authorship in PREFER
Authorship of publications coming out of PREFER reflects the collaborative nature of our work. When it is possible, researchers from public and private partners write and publish together with stakeholders within and outside the project.
We follow the authorship recommendations of the International Committee of Medical Journal Editors (ICMJE), also known as the Vancouver guidelines. This means that authorship is based on:
- Substantial contributions to the conception or design of the work; or the acquisition, analysis, or interpretation of data for the work; AND
- Drafting the work or revising it critically for important intellectual content; AND
- Final approval of the version to be published; AND
- Agreement to be accountable for all aspects of the work in ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved
Data management in PREFER
PREFER has developed an initial data management plan to guide partners and provide oversight of general data management. This plan will be updated several times during the course of the project.
If you have questions regarding data management in PREFER, contact Monika Brand (Actelion), Eline van Overbeeke (KU Leuven) or Isabelle Huys (KU Leuven) through email@example.com.