Open PREFER project events
The PREFER project calendar is powered by Uppsala University. The link will take you to all thesis defenses at UU. Any open PREFER thesis defenses are listed in our events calendar below.Calendar RSS Subscribe to calendar
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Patient involvement in patient preference studies
Patients are key in the success of patient preference studies. This webinar focusses on the role of patients as partners in patient preference studies. We explain the value of involving patients at the stages of design and conduct of a patient preference study as well as at the level of communication.
DIA/PREFER patient preferences workshop
How much risk patients think is acceptable for a given benefit? Patient preferences can give us answers, critical for developing medical treatments. In this Workshop, we will navigate through the patient preferences landscape, starting from the IMI PREFER project, exploring patient involvement in Patient Preference studies and showing practical implications in regulatory decision making.
The PREFER Research Agenda - Identifying Methodological Priorities for Patient Preferences Research Using Stakeholder Input
In order to develop the PREFER research agenda, a series of qualitative and quantitative assessments was conducted engaging stakeholders who are involved in planning, execution, and/or evaluation of patient preference research across the medical product lifecycle. The result of these assessments was a list of methodological questions of concern to these stakeholders.
Patient preferences to Assess Value IN Gene therapies: the PAVING study as an IMI PREFER case study
Decisions about whether to approve new and emerging gene therapies are impeded by the associated uncertainties, e.g. long-term outcomes. In this complex context, the PAVING study investigated haemophilia patients’ preferences for gene therapies. Learn about how the preference study was designed, what the results were, and what the impact might be in this webinar.