Publications from PREFER

  • de Bekker-Grob, Esther W.; Juhaeri, Juhaeri; Kihlbom, Ulrik; Levitan, Bennett et al.

    Giving patients' preferences a voice in the medical product lifecycle: why, when and how?: The public-private PREFER project: Work package 2

    Part of ISPOR Value & Outcomes Spotlight, p. 19 19-21 21, 2018.

  • de Bekker-Grob, Esther; Berlin, Conny; Levitan, Bennet; Raza, Karim et al.

    Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project

    Part of Patient, p. 263-266, 2017.


Janssens, R et al., Stakeholder perspectives on the integration of patient preferences in the medical product live cycle: A multimethod approach

Schölin Bywall K et al., Rheumatoid Arthritis patients' perspective on the value of patient preferences in regulatory decision-making during drug development: A qualitative study

Soekhai V et al., Compendium of methods for measuring patient preferences in medical treatment

van Overbeeke E et al., Conditions and contextual factors that influence the utility and application of patient preference studies: A study combining literature and focus groups

Authorship in PREFER

Authorship of publications coming out of PREFER reflects the collaborative nature of our work. When it is possible, researchers from public and private partners write and publish together with stakeholders within and outside the project.

We follow the authorship recommendations of the International Committee of Medical Journal Editors (ICMJE), also known as the Vancouver guidelines. This means that authorship is based on:

  • Substantial contributions to the conception or design of the work; or the acquisition, analysis, or interpretation of data for the work; AND
  • Drafting the work or revising it critically for important intellectual content; AND
  • Final approval of the version to be published; AND
  • Agreement to be accountable for all aspects of the work in ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved

Data management in PREFER

PREFER has developed an initial data management plan to guide partners and provide oversight of general data management. This plan will be updated several times during the course of the project.

If you have questions regarding data management in PREFER, contact Monika Brand (Actelion), Eline van Overbeeke (KU Leuven) or Isabelle Huys (KU Leuven) through

Download DMP