Testing preference elicitation methods in clinical case studies
Our researchers will test different methods for preference elicitation in clinical case studies. We will evaluate what patients think is relevant about their disease and its impact. We will look at which treatment options they prefer and their willingness to accept trade-offs between benefits and risks of their treatment. These methods will be evaluated at different decision points in the drug development process.
Plans are in place to run patient preference studies in three disease areas where patients and clinical research partners have been engaged: cancer, rheumatoid arthritis and neuromuscular disorders. Partners from the pharmaceutical industry will provide more patient preference studies that will cover disease areas from the companies’ portfolio.
Stay tuned to find out more about our studies! You can watch a clip about the rheumatoid arthritis study below.
We start our work with a literature review, interviews and focus group meetings with patient organisations, physicians, regulatory authorities, health technology assessment bodies, industry experts and academics on their key concerns, needs, expectations and desires on the assessment and use of patient preferences.
Coming soon: Clinical case studies
PREFER is planning patient preference studies in three disease areas where patients and clinical research partners already provide expertise: cancer, rheumatoid arthritis and neuromuscular disorders. Further on, both academic and industry partners will add more patient preference studies studies that will help us cover different disease areas, methods and research questions.
By the middle of 2019, we will have drafted recommendations and asked stakeholder advisory groups to test them to see how they work for other disease areas and decision points. By the middle of 2021 we expect to have a refined draft. Final recommendations will be presented in the autumn of 2021.